Living with Dementia – The Early Days

Over the last year, we’ve seen a significant increase in dementia diagnoses, but many cases still go undiagnosed. Dementia is a real disease that’s on the rise, affecting approximately 1 in 10 people over 65, and nearly 1 in 3 over 85.

Dementia progresses in stages and varies in pace, and since there are different types, it impacts everyone differently. After all, we are all unique, so there’s no one-size-fits-all approach.

In the early stages, the person with dementia is often aware that their memory is fading and that their independence is slipping away. This awareness can persist in various forms as the disease progresses. Just pause for a moment and imagine how that might feel… Not knowing what day it is—mildly annoying, right? But then, not remembering your plans or how to find out where you’re supposed to be—frustrating? Knowing something has happened but not what—sadness? Fear? Not knowing what’s coming next—scary? And if your only memory of an event is the emotion it left behind… it’s overwhelming to even think about.

Reading this back, it’s hard-hitting, and having supported clients and their families through it, I know it’s real. This is where the impact on those closest to the person with dementia—whether a son, daughter, sibling, or friend—comes into play. You’re doing your best to support, love, protect, and help maintain that person’s independence.

Here are some tips we’ve found helpful at Radfield Home Care, which might help you too:

• Patience and Empathy: Above all else, give them time to process and understand. This might involve dealing with frustration, denial, or even anger.
• Routine: Establish a consistent routine—same activities, same place, same time. This could be as simple as a morning routine or regular visits to clubs or coffee shops.
• Technology: Devices like Alexa can be invaluable. They provide gentle reminders for things like taking medication, meal times, or even just letting them know what day it is.
• Stay Active: Encourage both physical and mental activities. It’s easy to stay at home, but integrating fitness clubs, exercises, or mental activities into the routine promotes a healthy, balanced lifestyle.
• Body Language and Communication: Keep it simple and slow. Use a relaxed, open posture and make eye contact. This helps convey calmness and understanding.

We hope these tips help. Remember, there’s a wealth of support available, including from Dementia UK, which offers access to Admiral Nurses. These professionals support both the person with dementia and their caregivers, helping you make the best decisions and create a safe environment so your loved one can continue to live their best life.

If you would like to find out more about Radfield Home Care and the home care support services offered across the country, you can visit www.radfieldhomecare.co.uk or if you would like to reach out to our local team in Epsom please contact [email protected] or 01372 502 193